Tuesday, October 6, 2015

Our April 2015

I think it's highly unlikely that I will finish our monthly logs by the end of the year as I keep falling behind. And yet I persist. Here is our April.

Monday, October 5, 2015

Crawling baby

I meant to post this video when I talked about Little Dorrit turning one. She's doing a lot better crawling and physical therapy is going well. I'm not sure when they'll start on walking with her but I can't imagine it will be too far away.


Also, the day before her birthday, she had a checkup and Little Dorrit was 25 1/2 inches long and 17 pounds. She sure is a tiny little thing!

Wednesday, September 30, 2015

Little Dorrit turned one

On September 17th, Little Dorrit turned one. As the date of her birthday approached and then passed, I couldn't help remembering so many of the things we experienced after she was born...how I felt like our lives were in constant turmoil and we had absolutely no control over what was happening. It really is a miracle that Little Dorrit has made it this far and that she is doing so well! We are so grateful

I wanted to do something big and wonderful to celebrate the first year of Little Dorrit's life but my work schedule was really busy that week so our celebration ended up being just our little family. It was simple and sweet. We went out to eat as a family, bought some cupcakes and watched Little Dorrit "open" presents.

I love seeing Little Dorrit grow and learn. She's making fun little baby sounds and loves to mimic other people. Her favorite sounds are, of course, a run of mamamamma's and dadadadada's. She'll also whisper "Hi" to us and she's recently started using what I can best describe as a "Batman" voice. Her face lights up whenever she sees me or Mr. Rochester and she absolutely adores Trotwood. The other day, Trotwood had a day off of school and she just leaned on the beanbag we use to keep her out of the kitchen and watched him for awhile.

Little Dorrit loves to crawl and always wants to be moving, now that she can move. She has a slight little hitch to her crawl sometimes that her physcial therapist thinks is due to some remaining torticollis. Overall, we feel like she's really doing fabulously and hope to be able to celebrate many more birthdays to come.

Tuesday, September 1, 2015

Just the way he is...

This morning, I took Trotwood to a doctor's appointment and on the way to the appointment, he shared some of his thoughts with me. The thing that was troubling him the most this morning was that he was confused about who made Ultron because in the Avengers cartoon, Ant Man made Ultron but in the Earth's Mightiest Heroes cartoon, Tony Stark made Ultron. So, who really made Ultron? As I didn't have the answer, I just smiled and told him, I didn't know but we could find out. I texted this little bit to Mr. Rochester who replied by saying "Maybe we are doing something right as parents if those are the sort of problems/concerns our child has." Gosh, I hope so! Parenting is tough and I often feel like I'm doing it all wrong. It is my hope that Trotwood has a few more years of just having these types of concerns that trouble him the most. 

I love this little boy so much and want to remember him just the way he is right now with his innocent questions and the joy he finds from little things in life. Today, he marveled at photos of caterpillars and spiders and we read "The Dark" by Lemony Snicket before bedtime. When we finished he said, "I liked that book! I want to talk to the dark but I don't know if it will talk back." Today's clothing ensemble of choice for our big 6 year old boy consisted of: Spider-Man shoes, Spider-Man backpack, Batman lunchbox, Thor t-shirt, Batman hoodie, and more than likely Pokemon undies (although these were never actually verified but it was either that, Avengers, or Skylanders). I am so grateful to have this wonderfully sweet boy in my life just the way he is.

Thursday, August 13, 2015

Cool like dad

I think we found the onesie Little D. is wearing in this photo in the boys section somewhere. She and Daddy match with their glasses and 'staches! 
And yes, this photo was taken at yet another doctor's appointment. Yesterday, Little Dorrit's pediatrician looked at her rash without having her dressing changed. It was changed today because somehow she managed to move the bio patch still under the dressing which helps keep infection away from the insertion site on her chest. The rash still looks bad to me but so far, she hasn't had a fever and she's still acting like her normal self. Today, we had a small incident where Little D. was army crawling around and she turned her head and didn't see the corner of my dresser because it was on her blind side. Somehow, she ended up cutting the inside of her mouth - we think she cut the frenulum in her mouth because it bled a lot. Poor thing. I called the doctor and this doesn't seem to be an unusual injury for a young child. She's doing ok now but it was a bit traumatic for us earlier.

Monday, August 10, 2015

Monkey feet

Lately, Little D. has been grabbing things with her feet a lot...like a monkey does! It is so funny to see and she is so strong! Trotwood never did this so it's neat to see her explore things differently. This past week, we've seen Little Dorrit sit up on her own a lot more and she's continued climbing things. She likes to clap whenever she sits up on her own because when she first started doing it, we would cheer and clap for her and now she's gotten to be a pro at transitioning to the sitting position so we forget to clap for her sometimes but she still does it!

Our very latest medical adventure with her is that she has developed a rash underneath her dressing for her central line and we have been working with medical professionals to try and figure out how best to treat it. I'm telling you, there is never a dull moment with her!

Friday, August 7, 2015


As of Wednesday, this girl is speech therapy free! Hooray! After months of weekly visits, Little Dorrit's speech therapist made the determination that Little D. has the skill she needs to eat and that she can do it. Now, I wouldn't necessarily say that our girl is a fan of food - she's not actually - but she will eat. We still have to use her g-button to make sure she is eating enough calories to grow and gain weight but we will continue to try to give the majority of her food by mouth including baby food solids. Over the next few weeks, we are going to try out different foods with her and see how she does. Tonight, I fed her a few mashed up beans and I think she liked them. She sure has come a long way. Maybe someday, she will actually learn to enjoy eating.