Saturday, January 16, 2016

Flowers

My sweet, thoughtful sister sent us these beautiful flowers in remembrance of our oldest daughter who would be eight years old today. We feel so loved.

We miss her and love her so much.

Saturday, January 9, 2016

Birthday

Happy birthday to our dear Betsey Trotwood. We love and miss you so much. Thanks to your younger sister, we now have medical answers to why you left us so early. We think of you often and wish you could be with us.


Friday, January 8, 2016

A very long night

Well, after a really long night but a super short stay at Arkansas Children's Hospital, Little Dorrit, Mr. Rochester and I finally made it back home this afternoon. Thursday night, I was about to give Little Dorrit her medication and I looked down and saw blood on the outside of her central line. Mr. Rochester examined it and found a small hole in the line which meant that one of us needed to take Little Dorrit to the ER at the children's hospital three hours away to get it repaired. I was going to stay home with Trotwood but after some consideration, we thought it would be better if we both made the trip to Little Rock. By the time we got to Little Rock, it would be really late and it is absolutely exhausting taking Little D. to the ER in Little Rock alone. Since we were pretty sure we would be able to come home the next day, we asked some friends if they could keep Trotwood for the night and take him to school in the morning. Of course, he was ecstatic to be able to go and sleep over at a friend's house!

Mr. Rochester literally sped to Little Rock and shortly after we got on the road, a police officer pulled us over. When he asked us what our hurry was, Mr. Rochester explained our situation. The officer clarified that it was an emergency situation and then said, "Put on your hazards and I'll tell them you're coming." Basically, he gave us permission to speed. So we did. We drove between 90-100 mph to get there and made it in record time. We arrived at the ER around 9:45 pm and waited and waited in the ER until we were admitted to the hospital around 4 am. One of the reasons it took so long to get us admitted is because they didn't know if we actually needed to be admitted or not. Usually, they can just repair central lines in the ER but since it was so late at night, the staff on call weren't exactly sure of the procedure. Then, they thought they could repair it but they couldn't find the repair kit and said she might have to have surgery and just get an entire new central line, which is definitely not the thing we wanted to have happen. 

So, since no one knew what to do, they poked her with an IV so we could give her medicine to her and then they admitted us. They were going to admit us to a pediatric ward but we mentioned that we usually go to hematology/oncology and they put us there. I'm so glad they did because the staff on that floor know Little Dorrit and they all know exactly what she needs. Also hem/once staff are just plain awesome. The minute we showed up two staff members brought in two brand new toys for Little Dorrit. Many of them even remembered her from the last time we were there. One of the nurses even brought in some pajamas and cut the arm off of the pjs so Little D. wouldn't pull on the clamp on her line and we wouldn't have to ruin any of the clothes we brought.

We were finally able to get a few hours of sleep and then around 10 am, a surgery nurse came and repaired her line. With the repair kit that no one in the ER could find. As you can see, Little Dorrit was less than thrilled about the whole thing but honestly, the worst part for her was just wearing the mask (and the IV poke). 
Shortly after the repair, we were on our way home equipped with the the surgery nurses' pager numbers and instructions on exactly what we needed to do if this happens again on an evening or weekend (which is, of course, always when it happens).

Little Dorrit did really well at the hospital although I am glad that it was a very short stay. Keeping a toddler from pulling on IV lines is quite a challenge.




Tuesday, December 29, 2015

December 29th

Happy eleven years to us today! What a journey it has been!

Monday, December 28, 2015

December 28th

So apparently, I missed taking a photo on December 28th. But, I finally uploaded the short videos of Little Dorrit walking. She's doing awesome with it. You'd never know she was missing three toes on her left foot. 

video


video

Sunday, December 27, 2015

December 27th

Little D. was being super cute with Mr. Rochester. I took a picture of them and Trowtwood wanted to get in it too. This is what he did.

Saturday, December 26, 2015

December 26th

Little Dorrit looked so cute toddling around in sock monkey slippers today. She is doing so much better walking!